CDKL5 Australia

This page has not yet been reviewed by our Scientific and Medical Advisory Committee. Content is written by parent volunteers and may not reflect current medical guidelines.

Research

Scientific & Medical Advisory Committee

Our Scientific & Medical Advisory Committee (SMAC) provides expert guidance to support CDKL5 Australia’s research strategy and priorities.

Coming soon

We’re finalising the committee structure and member appointments.

A young Australian child with CDKL5 Deficiency Disorder

Our role

Scientific guidance

Provide expert advice to strengthen the quality and impact of CDKL5 research.

Evidence informed

Ensure decisions are grounded in the best available evidence.

Global collaboration

Connect with global experts to advance understanding of CDKL5.

Community focused

Keep the needs of families at the centre of our research priorities.

Questions or feedback?

We’d love to hear from you. Please reach out via our Contact page.

Contact us