CDKL5 Australia

This page has not yet been reviewed by our Scientific and Medical Advisory Committee. Content is written by parent volunteers and may not reflect current medical guidelines.

A young Australian child with CDKL5 deficiency disorder during a physiotherapy session

Resources & Helpful Links

Curated links to trusted resources for Australian CDKL5 families. Each resource has been reviewed by our team.

Cortical Visual Impairment

CVI Scotland

Comprehensive resource for understanding cortical visual impairment (CVI), common in children with CDKL5 Deficiency Disorder.

Epilepsy

Epilepsy Foundation Australia

National epilepsy information, seizure first aid training, and support services for families managing epilepsy.

NDIS & Funding

NDIS Early Childhood Approach

How to access early intervention supports through the NDIS for children under 9 with developmental delay or disability.

Carer Support

Carer Gateway

Australian Government services for carers, including respite, counselling, financial support, and emergency assistance.